Skip to main content

Am I Disabled?

This article has been going through my head quite a lot recently and I’m feeling a little self indulgent so bear with me.

As a kid I was on the special needs list throughout school and given a classroom assistant to help with my tracheostomy care. I was considered disabled enough to warrant disability benefits right up until I turned 18 when they decided that I wasn’t mentally incapacitated enough and too independent. A panel of bureaucrats sat across the table and said “we can see you are but there’s nothing we can do.” I didn’t tick the right boxes.
I’ve worked since I was old enough and supported myself as much as I could and excluding a few short absences from work I have been successful in that.
Until now.
Now I can’t support myself. I struggle with self care. I’ve had to give up my home and I’ve lost my independence. I’m back to getting surgery’s every 6-8 weeks. They were usually just day cases but the last few have been fairly severe with extended stays (I get to have another one next week, isn’t that fun?) and doctors are making it very clear that any action they take will only stop further progression and I will never breathe normally or unassisted. Add to this multiple chronic illnesses, depression and anxiety, and a body that rejects medication and just decides to give up sometimes, I will never be 100% physically or mentally able.
And yet when I call myself “disabled” or make a flippant comment about it I’m told to stop. That I’m not disabled.
The legal definition is having a physical or mental condition that limits movements, senses, or activities. Well my trachey tube limits me daily. My illnesses limit me daily. It’s usually only small ways but they are limits and, over time, they build up and take a toll.
And yet I know that this current setback is only temporary. I know that in time I will get back to feeling my version of normal. Yes I’ll never be 100% physically able and I’ll never breathe on my own but I will heal and become functional again. So am I disabled?
What more do I need to go to through before others can accept how I feel?



*a version of this post was originally posted to the Faeriwood Facebook page but I am saving it here for those who need it.

Comments

Popular posts from this blog

Ophrys Skincare

If you have been following my blogs and social media you will have seen that I am currently partnering with Therapie Clinics and trying out their range of specialist facials to try and improve my skin. Alongside the facials (my second of which is coming up in April!) I have really tried to up my game with my skin care. Rather than just slapping everything that says hydration on I am really trying to target specific areas and problems. This has not been without it's troubles as my sensitive skin tries to adjust to this higher level of care. As a result of this - and a few other internal factors - I have been experiencing a few more breakouts than normal but I have been coping with them better. It's all about the give and take. And when it comes to the 'give' I was very lucky to be approached by Ophrys Skincare to talk about their new range of low molecular hyaluronic skincare with their patented Mini-Hax particle. "Low Ma-what?" I hear you say? Well... Low

IMATS London 2013 Haul featuring Nars, Crown Brush UK, OCC & more!

Hello Lovelies!! And how are we this fine day? I'll be honest with you I'm completely shattered but it's all been worth it as I had an amazing time at IMATS this weekend. I'll be posting some photos of the show itself shortly (I need to wait first of all to see which photos are chosen for the Irish News article Bexberry is writing - Sounds quite fancy doesn't it!) but before then I thought I'd show you the important stuff... My Haul!! As you may have seen from my Instagram I went a little brush crazy with a total of 10 brushes! First up and top of my shopping list was the Louise Young  foundation brush, Bex had picked it up last year and has raved about it ever since. And since learning that stipple brushes actually aggravate dry skin and cause it to flake (!!!) I was on the hunt for a new brush and this was it. Have to say 3 days in & I'm loving it. Already I notice a difference in the longevity of my foundation just from this one brush! Nex

Le mini macaron gel manicure kit review

Can we talk about how long it's been since I've done a nail post? Too long. Far too long! Well wait no more because I have the cutest little product to show you! I picked Le mini macaron in Sephora. It was clearly over priced at around €30 but completely irresistible to my gel obsessed self (hey, it's sort of my job so I have an excuse) especially in my Sephora daze where I went into shove-everything-in-the-basket mode.  No regrets.  The kit comes in 4 colours, I chose peach because I love saying le péché in French and I LOVE the colour peach. It's the cutest little kit that comes with a usb cable, a little nail file and a cuticle pusher as well as some remover wipes and a European plug. The latter two remain completely unused.  In Sephora itself you can buy stand alone polishes in a huge assortment of colours but to be honest, I wouldn't buy these polishes again. Single step UV polishes (no base or top coat needed) sound great but there is